My sister is in bad health

2good4U

Professional
You are saying it doesn't matter what you eat?

So nothing either helps or exasperates the condition?

Yeah, a major digestive system dysfunction that's unrelated to the diet.:rolleyes:


For those of you with a brain, get a book that lists all the nutrients in foods
and you'll notice, if you're perceptive and observant enough, that foods rich
in certain nutrients will exacerbate the condition.

It has to do with the diet being such that it creates an imbalance that leads
to, and is probably the root cause, of the condition. (might be alkalosis)

Forget trying to find out why and just find out what, as in the foods to avoid.


Or you can go with the slash, burn, cut and drug routine pushed by the priest
of science-tology.:eek:
 
D

Deleted member 754093

Guest
Yeah, a major digestive system dysfunction that's unrelated to the diet.:rolleyes:


For those of you with a brain, get a book that lists all the nutrients in foods
and you'll notice, if you're perceptive and observant enough, that foods rich
in certain nutrients will exacerbate the condition.

It has to do with the diet being such that it creates an imbalance that leads
to, and is probably the root cause, of the condition. (might be alkalosis)

Forget trying to find out why and just find out what, as in the foods to avoid.


Or you can go with the slash, burn, cut and drug routine pushed by the priest
of science-tology.:eek:

I don’t think people are saying that diet is unrelated to the condition, rather that diet is not the sole cause, nor the sole fix
 

movdqa

Talk Tennis Guru
I don’t think people are saying that diet is unrelated to the condition, rather that diet is not the sole cause, nor the sole fix

DGold said that it's a genetic condition so it's clear that it's not the sole cause. Many have stated that stress is a factor, and pregnancy and other things have been mentioned.
 
D

Deleted member 754093

Guest
DGold said that it's a genetic condition so it's clear that it's not the sole cause. Many have stated that stress is a factor, and pregnancy and other things have been mentioned.

Yeah, but then you have some saying that it’s solely due to her diet and that eating natural and organic foods will automatically fix it

As with most things, it’s probably an interaction between the two
 

Raul_SJ

G.O.A.T.
DGold said that it's a genetic condition so it's clear that it's not the sole cause. Many have stated that stress is a factor, and pregnancy and other things have been mentioned.

Genetics and diet are listed as some of the risk factors.

But for some, diet may be the sole cause. How can anyone say conclusively that it's solely genetic when others with the same genetics do not develop it?

I would look to diet modification first and try to rule it out before concluding it's solely genetic.
 
D

Deleted member 754093

Guest
Genetics and diet are listed as some of the risk factors.

But for some, diet may be the sole cause. How can anyone say conclusively that it's solely genetic when others with the same genetics do not develop it?

I would look to diet modification first and try to rule it out before concluding it's solely genetic.

Epigenetics, genetic predispositions, role of stress, bad luck....
 

ByeByePoly

G.O.A.T.
I am sorry to hear about your sister's suffering. I can empathize.

I got diagnosed with UC over five years ago after suffering from IBS for a decade prior to that. Thankfully my UC is only in the last six inches of the colon. I have managed to keep it mostly in remission using first-line oral mesalamine (a form of aspirin) along with high doses of curcumin/turmeric. Mesalamine by itself if not as effective. I am glad I discovered these studies while trying to figure out why UC incidence in India is low.

https://www.ncbi.nlm.nih.gov/pubmed/23076948

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4001731/

Here is a more recent study using a more bioavailable nanoparticle version of turmeric showing even better results

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5630155/

Costco curcumin along with fish oil works just fine for me. I plan on testing out the nanoparticle version soon.

I also follow a low FODMAP diet developed by researchers at Monash University to keep IBS symptoms in check.

https://www.monashfodmap.com

My main issue with keeping this chronic condition under control like my other chronic condition asthma is secondary infections. Normal maintenance is interrupted by Norovirus and other enteric infections that the kids bring in are hard on my gut and cause flares. This is similar to how the flu might degenerate into pneumonia if not properly managed, because of my asthma. I can imagine how hard it must be for your sister who has to raise three kids and also deal with patients who might all be sources of secondary infections.

What frustrates me a lot with the current medical system is how a profit motive pushes aside the ideal solutions to what are considered lifestyle diseases like UC.

Take the case of gastric ulcers before 1998. Similar diet, stress arguments and profit motives in pushing symptom alleviating therapies/drugs (this includes natural and holistic remedies) kept the real cause from being properly investigated. The sheer persistence from a guy like Barry Marshall in the face of so much resistance shone a light on the ultimate truth that most gastric ulcers are caused by h.pylori infections. All this transpired in the not so recent past. I am glad he won the Nobel.

I am hopeful that John Hermon Taylor's work is similarly recognized for Crohn's and he too wins a Nobel for his work in his lifetime. Read his seminal paper where he describes the real cause of Crohn's (and likely UC) which is Mycobacterium avium subspecies paratuberculosis (MAP) infections.

https://gutpathogens.biomedcentral.com/articles/10.1186/1757-4749-1-15

MAP is in our milk (including breast milk), meat, water and produce and hard to avoid. It is spreading through the microbiome of most of the world. If this were a disease like tuberculosis to which it is closely related to, vaccine development would be much more of a priority. But milking patients of tens of thousands of dollars a year using specially coated aspirin derivatives or immunomodulators is much more lucrative. Anyways India has a high prevelance of MAP but fairly low prevelance of UC because of (IMO) the extensive use of turmeric in Indian cooking.

Hopefully, the MAP vaccine trials are concluded and available soon so people like your sister and me would not have to suffer from this debilitating condition because the root cause is addressed.

https://clinicaltrials.gov/ct2/show/NCT03027193

Do you know if there is a daily limit of curcumin/turmeric? I take 1000mg of Sam's Club Member's Mark brand for a toe joint issue (hallux limitus), and 500mg Krill Oil.
 

dgold44

G.O.A.T.
Update the new meds are not working !!
They are down to the final med and it will mostly likely not work.
She is bed ridden and going back to hospital and lost 20 pounds and slowly dying.
They are going to have to take out her Colon within a week.
Very sad.
She is in agonizing pain 24/7 and can barely eat foods.

She had to take a leave from her job as Doctor
 

dgold44

G.O.A.T.
Do you know if there is a daily limit of curcumin/turmeric? I take 1000mg of Sam's Club Member's Mark brand for a toe joint issue (hallux limitus), and 500mg Krill Oil.

this is a brutal autoimmune disorder and has zero to do with stress or diet

I am getting super angry reading some of these ignoramus responses
 

movdqa

Talk Tennis Guru
this is a brutal autoimmune disorder and has zero to do with stress or diet

I am getting super angry reading some of these ignoramus responses

I'm sorry to hear that she isn't responding to the medication. What's odd is that my sister is going through something very similar or it might be the same thing. I was shocked when I heard about it from my mother. She has had problems for over a decade but they have gotten worse lately and the doctors couldn't figure out what she has. She has had a large number of tests over a long period of time our of top-notch hospitals. She thinks that her husband and daughter figured out that she has autoimmune aplastic anemia (her husband is a brilliant engineer and daughter is almost a medical doctor and Phd).

Aplastic anaemia is a rare disease in which the bone marrow and the hematopoietic stem cells that reside there are damaged.[1] This causes a deficiency of all three blood cell types (pancytopenia): red blood cells (anemia), white blood cells (leukopenia), and platelets (thrombocytopenia).[2][3] Aplastic refers to the inability of stem cells to generate mature blood cells.

It is more frequent in people in their teens and twenties, but is also common among the elderly. It can be caused by heredity, immune disease, or exposure to chemicals, drugs, or radiation. However, in about half the cases, the cause is unknown.[2][3]

The definitive diagnosis is by bone marrow biopsy; normal bone marrow has 30–70% blood stem cells, but in aplastic anaemia, these cells are mostly gone and replaced by fat.[2][3]

First line treatment for aplastic anaemia consists of immunosuppressive drugs, typically either anti-lymphocyte globulin or anti-thymocyte globulin, combined with corticosteroids and ciclosporin. Hematopoietic stem cell transplantation is also used, especially for patients under 30 years of age with a related matched marrow donor.[2][3]

The disease is also known as the cause of death of Eleanor Roosevelt and Marie Curie.

-- Wikipedia

I spoke to another sister (nurse) yesterday and she said that she has seen it in patients. What appears to happen is that the low white blood count kills the body's resistance to infection and that this can affect the GI system (daughter has had GI problems for a long time and doctors haven't been able to figure out why) and cause other strange problems in the body. Strangely enough I had this chat with someone else who has had these problems for decades but the doctors think that it's either Crohn's or UC but her treatment is going well. Her daughter, though, has some of the same infections that my sister has.

Losing your colon and getting a colostomy isn't the end of life. I faced death last summer and you bargain for survival and then you find out what you're going to lose to survive. Once you figure out that you have a decent chance for survival, you start bargaining to get back what you lost or to try not to lose it. The question is: do they know what your sister has and will this procedure cure it or are they only dealing with a symptom?

Our medical system can be outstanding when they know what they are dealing with and where the symptoms or tests identify the root problem and there's a solution. It's a lot harder with rare, multifaceted problems where you need someone that may have seen it or can recognize a combination of symptoms and what they might point to.

I need to go see my sister as well.
 

movdqa

Talk Tennis Guru
Good to hear.

Hopefully her athletic background will help her to get back on her feet faster.
 

Mac33

Professional
Fark.....I lost a ping pong match tonight and i am depressed.

I need to put things in to perspective.....
 

movdqa

Talk Tennis Guru
If she had the fake doctors of Las Vermin , she would be dead

Chicago and Boston have best doctors on planet

I can personally attest (from my own personal experience and those of friends, family and co-workers) that Boston provides absolutely world-class healthcare. I do travel 40 miles to get care in Boston for specialized care - we don't have the vast array of specialists that they do in Boston in my state. My sister's sister-in-law died from something that was fairly routine. She had it treated here because Boston was inconvenient. By the time she went to Boston to get it fixed, it was too late.

I do not know that much about healthcare in Chicago but it's good that your sister has access to the best in medical care and the doctors to diagnose and figure out a treatment.
 

Sentinel

Bionic Poster
Sorry for going off-topic, but did not want to start a new thread to ask this:

Does the US provide free care for old people ?

My mum tells me that an old friend of hers is in an old age home which is free of charge. I am wondering that her daughter might be footing the bill. Seems that lady is very happy there.
 

movdqa

Talk Tennis Guru
Sorry for going off-topic, but did not want to start a new thread to ask this:

Does the US provide free care for old people ?

My mum tells me that an old friend of hers is in an old age home which is free of charge. I am wondering that her daughter might be footing the bill. Seems that lady is very happy there.

That turns out to be a complicated question and I can perhaps shed a little light from my own experiences and understanding (which I don't guarantee will be correct but should provide a starting point should someone care to correct me on where I err).

Those working in the private sector or for non-profits, and sometimes government jobs pay Social Security and Medicare taxes. If you pay into these two for enough quarters, then you get payouts at retirement for the rest of your life from Social Security, and medical coverage for the rest of your life from Medicare. Medicare has four parts: A, B, C and D. A covers Inpatient hospital care, Inpatient stays in most skilled nursing facilities, Hospice and home health services and there is no cost for those that paid into it during their working years. Part B covers Doctor and clinical lab services, Outpatient and preventive care, Home health care, Screenings, surgical fees and supplies, and Physical and occupational therapy. The typical cost of Part B is $134/month. Part C is a different way to get Parts A and B, and often works through private providers. Part D is prescription drug coverage and the cost depends on your plan - you get a formulary list and drug tier(s) that determine your monthly costs for this part.

I have seen cases where Medicare is extremely generous, particularly in the case of my mother who had a heart attack in her early-90s. She got top-notch care at the Shapiro Cardiovascular Center, a couple of weeks in a skilled nursing facility, and in-home assistance one she returned home.

If you didn't contribute enough quarters to Medicare while working, then you are available for Medicaid which is a public assistance program. These programs are jointly administered by The Federal Government and The State - so Medicaid will vary from state to state. In MA, you may put your parent(s) into an old age home free of charge if you can demonstrate need, both health and financial. People of means often use financial planning services to shield their assets from the government here. If the elderly person accepts long-term care, then they have to pay down their assets for the care where they might want to transfer them to relatives. There are legal ways to do this but it requires planning and lawyers.
 

2good4U

Professional
I do not know that much about healthcare in Chicago but it's good that your sister has access to the best in medical care and the doctors to diagnose and figure out a treatment.

The 'best medical care' from the slash, cut and burn crowd?
(and for a nice profit, no less)

And that's a good thing?


Have fun with that colostomy bag, and don't forget to thank
those great doctors for their wonderful medical care.
 

2good4U

Professional
My free advice, for those suffering from any inflammatory health problem,
is take some supplemental Selenium.

There's also a possibility that cold food and drink may be causing it to begin
with, so avoiding them might be worth a try.

At least, before all those great doctors give you the best medical care that
a fool could ask, and pay through the nose, for.
 

dgold44

G.O.A.T.
I can personally attest (from my own personal experience and those of friends, family and co-workers) that Boston provides absolutely world-class healthcare. I do travel 40 miles to get care in Boston for specialized care - we don't have the vast array of specialists that they do in Boston in my state. My sister's sister-in-law died from something that was fairly routine. She had it treated here because Boston was inconvenient. By the time she went to Boston to get it fixed, it was too late.

I do not know that much about healthcare in Chicago but it's good that your sister has access to the best in medical care and the doctors to diagnose and figure out a treatment.

Chicago is loaded with top notch doctors and elite hospitals
My city , Las Virus , you might as well go to Tijuana to get better health care lol
 

dgold44

G.O.A.T.
I can personally attest (from my own personal experience and those of friends, family and co-workers) that Boston provides absolutely world-class healthcare. I do travel 40 miles to get care in Boston for specialized care - we don't have the vast array of specialists that they do in Boston in my state. My sister's sister-in-law died from something that was fairly routine. She had it treated here because Boston was inconvenient. By the time she went to Boston to get it fixed, it was too late.

I do not know that much about healthcare in Chicago but it's good that your sister has access to the best in medical care and the doctors to diagnose and figure out a treatment.

As you get older : you realize that not all doctors are equal and some are very lousy and should not be practicing medicine
 

movdqa

Talk Tennis Guru
The 'best medical care' from the slash, cut and burn crowd?
(and for a nice profit, no less)

And that's a good thing?

Have fun with that colostomy bag, and don't forget to thank those great doctors for their wonderful medical care.

In this particular case, the doctors are using a meds-based approach so I don't think that surgery is involve in this case. But even if it weren't, a colostomy isn't the worst thing in the world. Colostomy products, like just about everything else today, are subject to great technological improvements with improved materials, design, big data feedback and analysis and training.

Everyone gets old unless they die prematurely. You may get into an accident, have a disease or genetic issue or get bitten by something with life-threatening consequences. Our modern medical system can do amazing things in putting people back together again or in sustaining life. Sometimes you lose something but anyone that's played tennis for over 20 years will understand that.
 

movdqa

Talk Tennis Guru
All doctors are equal but some are more equal than others

Nice animal farm reference

My surgeon runs a big GI department at a top hospital (#4 I think). She manages a big team of residents and interns and other staff. She also teaches at Harvard Medical School. I actually didn't see her at all last week during my surgery and hospital stay - it was residents and teams of interns that came around to see me. It's quite impressive to see all of these kids in their 20s and early 30s with big accomplishments under their belts with lots of energy, curiosity and intellect.

I spent a lot of time walking around the hospitals in the area and found Harvard Medical School. I always thought that it was in Cambridge but it's actually in the Longwood Medical Area which is close to Brookline. There were people taking pictures of their friends and relatives in front of the place. I assume that those folks were accepted students.
 

destroyer

New User
fantastic news hope she keeps experiencing progress with the new meds
she sounds special that will help in her recovery wish her WELL
 
Top